How can families of individuals with Rett Syndrome plan for care as their child ages?
How can families of individuals with Rett Syndrome plan for care as their child ages?
Emily Chin, PT, DPT
Mary Jane Weiss, PhD, BCBA-D
My teenage daughter has Rett Syndrome and has always been served in a setting designed for individuals with autism. It has generally served her well, as she needs highly individualized care, and has responded well to ABA intervention. Over the years, her medical needs have grown more complex, and I am wondering about the best settings for her as she ages into adulthood. What should I be thinking about? What settings can manage both the behavioral and medical challenges she presents? How can families of individuals with Rett Syndrome plan for care as their child ages?
